It’s humbling to realise that everything I’ve taken for granted over the last 13 years, touching Lils, holding her, being beside her, I now have to ask permission to do it.That now, other mothers’ hands have the unspoken right to touch my daughter.I have to ask permission to perform the most basic of ‘mum duties’ for my own child.My. Own. Child.16 days in the head of a mum during her teenage daughter’s battle with HLH.